Neurofibromatosis

NF Walk Supports People With a Genetic Condition Called Neurofibromatosis

Gov. Burgum proclaimed neurofibromatosis awareness day

FARGO, N.D. —¬†Dozens in the community are taking steps to support those living with a disease called neurofibromatosis. Organizer Darcy Barry was diagnosed when she was 18. “Devastation, my life was going to end, will I ever be married, will I ever have a family, how long am I going to live…” Those were the thoughts that were going her…

Second Annual “Step Up for NF” Raises Awareness for Rare Condition

The walk intends to raise funds for people battling neurofibromatosis

FARGO, N.D. —¬†Darcy Barry was born with neurofibromatosis (NF), a genetic condition that causes tumors on the face and skin. The rare disease occurs in one out of every 3,000 births. But she doesn’t let the NF weigh her down. “I take it a day at a time. I’m a fighter. I don’t let anything get in my way. Yes…